Confidence is coming in bounds now, and after seeing Jeannie Di Bons tweets and hand exercises, I’ve been stepping my physio up a notch. Jeannie is someone I follow for all my Ehlers Danlos Syndrome, Hypermobility exercise advice, you can find her Here and Here

I’ve been trying this out myself, as I have plenty of bobbles. Using a scrunchie, as that is less tight than a traditional bobble, I do 10 slow reps. Slowly opening under control and closing again under control.


I’ve also been practicing pinch holds, and picking things up, like rice because it’s so tiny, and pasta.


It soon aches, and I can’t always do the full 5 or 10 reps, but it’s definitely something to work towards and build upon.


I will keep working through doing exercises, though only starting at 5 reps. As these will start assisting normal daily living, I’m getting much better at door handles, key turning and buttons.
I’ve not heard from the hospital yet for an appointment, so I best ring to try to arrange one, keen to see how the bone has grown.
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